Tuesday, June 14, 2011

And just when I thought it was a sure thing.......

So, we have been looking and asking and begging for Nicholas to be put on the pump now for about a year and through reading blogs and lots of information on the internet, we decided to go with the OmniPod.  We filled out paperwork and sent it into the company and just when I thought we would get it..... low and behold, the Doctor is concerned with the pod not sticking or the needle coming out.  But, they are going to put Nicholas on a, I guess you would call it a "dummy pump".  It works, but they are going to put saline into it so we essentially get to test drive it.  Yeah!! 
I know the pump (from what I have read) is a lot more work, but I hope that I don't have to field any questions such as "Why did I have to get diabetes?" and "What did I do to deserve diabetes?" when I give him his injections.  
So we met with really nice lady and she gave us a breakdown of how the OmniPod works and the features of it.  The instructional meeting was about 45 minutes and then it came time to put the pod on Nick.  So she got it ready and prepped it with the saline solution and was keeping Nick's mind occupied the whole time with various questions.  She put the pod on him and started the cannula entry.  I felt sooooo bad because I could see the look on his face and I  just had a feeling had she not been there, he would have cried.  But he was an absolute trooper.  Good Job, Nick!!!
We were on our way up north that weekend, so we would be able to see how it did in the water and with him playing.  Well.... it didn't do so well.  It came unstuck and ripped.  But this was a good thing.  It gave us an idea of what it would do and we could be prepared.  It does really well if he doesn't get wet, it stays on much better.  But once you get that material wet, it becomes a little delicate.  But all in all, it was good, Nick was able to wear it without becoming aggravated by it. 

Wednesday, May 25, 2011

My sweet, sweet boy, Nicholas

I am the mother of a 6 year old named Nicholas.  Nicholas was diagnosed at the age of 4 with Type 1 diabetes on November 16, 2009.  And that was when my life changed.  
I noticed that for the past week, Nicholas had been so thirsty and urinating frequently.  I thought it was just a ploy to delay his bedtime, but I started to have a sinking suspicion that something was wrong.  
My husband took him into see his pediatrician and that was when the devastating news hit.  My husband called me as i headed back from a funeral and told me what had happened at the Dr's office. He told me that they tested his blood sugar and sure enough, he was so high, it didn't even register a number.  And also, that we were lucky we brought him in or he would have been on the floor the next day.  This wasn't happening.  I didn't want to go home.  I wanted to run away.  This wasn't my life- this wasn't supposed to be happening. 
When I got home, we had to take him to St. Joseph's Hospital because his Dr.  told us that that particular hospital has a really good endocrinology team for where we live.   We took him in and they escorted us up to the endocrinology unit.  To make a long story short, they started him on insulin and over the next 3 days, the ketones made their way out of his system and he was a different boy.   
We noticed that he got his appetite back and was eating breakfast, lunch and dinner without us having to coax him as much.  He was in a better mood.  But he wasn't happy about having to get his blood checked and the shots and being in the hospital. That was the heartbreaking part.  
They discharged us at about 3 - 4 days later (not really sure how many days we were in there due to lack of sleep) and we were on our own.  We had to act as our son's pancreas.  
We did really well taking care of him and took in an enormous amount of information to be able to keep him under control.
As of today's date, it has been about a year and a half since Nick has been diagnosed.  The hurt and heartbreak are still there, but it isn't nearly as bad.  Don't get me wrong.  I still have my days where I still cry because Nick will ask me "what did I do to deserve getting diabetes?" or "will it ever go away?".  I just want to tell him that he can give it to me and he won't have to have it anymore.  How I wish that were true.